↵In addition to the main local and national carer orgaisations that are listed on the main page of this section There are other organisations or groups that offer support for parents and carers in some way or another. Some are local and some offer support through a national network or online through forums.
21&Co (opens a new window) is a local registered charity run by parents, formed to help children with Down's syndrome, but also their parents, brothers and sisters, grandparents and other family members and friends.
ADHD Richmond and Kingston (opens a new window) offers support to parents/carers of children with Attention Deficit Hyperactivity Disorder and its comorbidities.
Crossroads Care Richmond and Kingston (opens a new window) Home and community respite services to carers and the people they care for. Their services also include a Saturday Club for Children with special needs.
Express CIC (opens a new window) was set up by two local parents of children with autism to provide a service for young people with autism, including PDA (Pathalogical Demand Avoidance) their carers, families and the wider community. As well as their services for children and young people with autism they offer separate Mums and Dads support groups which welcome all female and male carers of young people with an autism spectrum condition. They also run sibs groups for brothers and sisters of young people on the autism spectrum.
Growbaby (opens a new window) in Kingston offer support to families, including a clothing and equipment bank, support groups, and parenting classes.
Kingston Adult Education offer courses for carers such as singing and Zumba. Contact Kingston Carers Network (opens a new window) for information.
Kingston Centre for Independent Living (KCIL) (opens a new window) - KCIL’s mission is to provide information, advice and support to all disabled people living in the Royal Borough of Kingston and the surrounding areas and to empower them to have a voice, take control of their lives, and be treated equally. KCIL provide the SEND Personal Budget Brokerage Service for children and young people in Kingston and Richmond.
Kingston Mencap (opens a new window) is a local registered charity which support adults with a learning disability, and their families and carers.
Skylarks (opens a new window) provides a supportive and active community for children with disabilities and additional needs. They care for the whole family, providing opportunities to join in, develop and feel empowered. Skylarks want to remove the isolation that can be created for families and their children who have a disability or additional needs. They offer advice surgeries, support groups, therapies and training work shops for parent carers.
Momentum (opens a new window) - a charity that supports children and families affected by cancer and life limiting conditions. Based in Kingston and open to families across SW London and Surrey.
Phyz (opens a new window) Local parents of children with physical disabilities who feel that there is a need for a place where we can meet and chat and support each other. Children with physical disabilities and their families have a particular range of things to deal with and we felt that a way of connecting families and sharing experiences would be useful.
Post 16 Maze Support Group (opens a new window) is a group of parents of older children have come together to set up a new “parents supporting parents” group. This is for parents and guardians of young people with SEND who are in the complex world of post 16.
Hosted by Skylarks at The Crossway, 306 Richmond Road, Twickenham, TW1 2PD
All parents are welcome.
Richmond AID(opens a new window) is a charity run by and for disabled people in the London Borough of Richmond upon Thames and surrounding areas. They support people of all ages with all disabilities, including physical and sensory impairments, mental health issues and learning difficulties. They aim is to support disabled people to live independent lives and to have the same opportunities as non-disabled people. They also support parent/carers with services such as counselling.
Richmond Dyslexia Association (RDA) (opens a new window) is a voluntary organisation which aims to promote awareness of dyslexia and literacy difficulties in the Richmond Borough and to advise parents and teachers on the advice and support available.
Richmond Mencap (opens a new window) is a local registered charity which supports children, young people and adults with a learning disability, social communication conditions and additional needs (including ADHD) and their families and carers.
Richmond NAS (opens a new window) are a friendly parent-led group aiming to support families and individuals mainly in the Borough of Richmond upon Thames living with an autism spectrum disorder (including Asperger's Syndrome). They hold coffee mornings, liaise with other groups and provide regular updates via emails; our core objectives being support, information and awareness. They have a comprehensive information pack available to download on their website.
Ruils (opens a new window) (opens a new window) is a local charity that supports children and adults with disabilities and the elderly to live independently, be part of their community and to live life to the full. They provide information, advice, befriending and activities to clients and their families.
SEND Carers Coffee and Chat (opens a new window) is open to all and is based at the Castlenau Centre in Barnes. This is because the group feel there is a local need to be met by having an informal group that is local to Barnes, that parents and carers can drop into easily.
The Information, Advice and Support Service (SENDIASS) in Kingston and Richmond offers advice and support across a wide range of subjects. This may include help with personal budgets and how to use the Local Offer plus:
- support with understanding reports and letters, attending meetings and preparing for assessments and reviews
- information and signposting to support services in your area
- support with Transition and Preparing for Adulthood
- support with and signposting to mediation
- advice and support on benefits
SENDspeak (opens a new window) is a newsletter for keeping abreast of local news and local events across the world of disabilities in Kingston and Richmond (pan-disability) and wider. The system is difficult to navigate, and our parenting experience is unique to each of us. As parents, we are often each other’s best resource.
The intention is to empower families to navigate this difficult system and to support each other where possible.
SWL Girls Connect is a support group for parents of girls with Autism, covering several boroughs. They hold coffee mornings in a range of locations and are at Express CIC in Tolworth every other month.
If you would like to attend please contact the group by email: firstname.lastname@example.org
Traphic is a group of local parents of hearing impaired children. Some of children have permanent losses of varying degrees, some have persistent glue ear.
Traphic carry forward members’ ideas for helping children cope with their challenges. They will share our ideas and tips as parents and members of the community.
Traphic meet three times a year either in a local coffee shop or pub. The gathering in very informal.
Contact (opens a new window) is a UK-wide charity for families providing support, advice and information to families with disabled children. Their freephone helpline can put you in touch with other families in the same situation, local or national support groups and give you medical information about your child’s disability.
Contact also has regional offices providing support and helping you to find out what is available locally.
Contact publishes many more guides such as the ones below, they are available free from the helpline or can be viewed on the website.
Down's Syndrome Association (opens a new window) offer you information, support and advice on any question or concern you have related to Down’s syndrome. They have specialist advisers who can provide you with information and support on issues such as health, social care, benefits and education for people with Down’s syndrome. They can help you to access support locally and may be able to direct you to other sources of information.
Launched in Down’s Syndrome Awareness Week 2019, the Shifting Perspectives Podcast is brought to you by the Down’s Syndrome Association and hosted by Richard Bailey, photographer and curator of the Shifting Perspective project.
It tells the stories of people who have Down’s syndrome as well as of their families and carers, raising a smile, providing insights and challenging commonly held attitudes and prejudices.
Family Life Plus (opens a new window): a relationship support site for new parents raising a child with a disability.
Grandparents Plus (opens a new window) is the only national charity (England and Wales) dedicated to grandparents and their role in the care and development of their grandchildren. They have an advice section on their website for grandparents with disabled grandchildren and for those providing kinship care.
SWAN UK (opens a new window) (syndromes without a name), is the only specialist support network available in the UK for families of children and young adults affected by a syndrome without a name. We work with families of affected children and young adults aged 0–25, providing support and information in hospital, at home and in their local communities.
SWAN UK offer 24/7 access to support and information via our members – online communities, regular opportunities for parents to access face-to-face support as well as running regular whole family events.
A team of volunteer Parent Reps work locally to help facilitate our SWAN UK Local Networks, providing on-the-ground support and educating local services and professionals about the issues faced by families affected by undiagnosed genetic conditions.