This page contains useful links that have been suggested about subjects relating to health, conditions or disabilities. Inclusion on this page does not signify recommendation or endorsement by Achieving for Children.
Recycling specialist equipment
Achieving for Children is committed to using resources efficiently including children’s equipment. If you have specialist equipment related to physical needs which is no longer used but which could be recycled for use by another child, we would be very happy to take this, clean and service it and re-use it for a child who needs it.
Such equipment might include standing/walking and seating aids.
If you have such equipment please contact Christy.firstname.lastname@example.org at Moor Lane (020 8547 5741/5743)
The charity Cerebra also has a "freecycle" page where you can list or look for specialist equipment that’s not needed anymore to find or offer a new home.
Visit the Cerebra "freecycle page"
Finding information about health conditions and disabilities.
Contact a Family has an A-Z guide to over 400 conditions on their website.
Children with Medical Needs
Nasen (National Association of Special Educational Needs) published the following resource:
Children with medical needs: What schools and settings need to know (links to Nasen website)
Wellbeing of Children with Learning Disabilities
The University of Warwick, Cerebra, Mencap, the Challenging Behaviour Foundation, and parents of children with learning disabilities have developed the following guide:
A Parent’s Guide: Improving the well-being of young children with learning disabilities (opens an external website)
A handbook developed by ADHD Richmond - useful information from how to detect your child may have the condition through to what you need to do to obtain a diagnosis and then beyond to seeking support.
Autism Specrum Disorders; Autism, Asperger's Syndrome and Social Communication Difficulties
An information pack for anyone affected by an Autism Spectrum Disorder, including parents and those who provide support. This pack is compiled and updated by Richmond NAS.
The Brain Injury Hub website has been developed by The Children's Trust, the UK's leading charity for children with brain injury. Clinicians from The Children's Trust have contributed extensively to the website. The website was conceived as a way of sharing expertise about brain injury with the aim of providing information in an understandable language.
CBeebies health information for children
The CBeebies website contains lots of useful resources for parents around eduction, play and health. They have a series of fun videos which explain various health subjects to children in a simple way.
Alongside issues like rashes, ear infections, headlice, going to the dentist, subjects covered include:
- CT scans
- Plaster casts
- Nasal - gastro tubes
Children's Eye Health
Anyone can develop problems with their sight, but some groups of people may have a higher risk. For example, people who:
- are aged over 60
- are from some ethnic groups, such as African-Caribbean or south Asian
- have a learning disability
- have a family history of eye disease
When will my child's eyes be checked?
- within 72 hours of birth –this is known as the newborn physical examination and it can be used to check for obvious physical problems.
- between six and eight weeks old – this is a follow-up physical examination to check for any obvious problems that weren't detected soon after birth.
- at around one year old or between two and two-and-a-half years old – you may be asked whether you have any concerns about your child's eyesight as part of a review of your child's health and development; eye tests can be arranged, if necessary.
- at around four or five years old – some children will have an eye test when they start school, although this varies, depending on where you live.
It is also recommended that children have regular eye tests at least once every two years. These tests can be done at a high street opticians and are free for all children under 16 years old (and those under 19 years old in full-time education). Speak to your GP or health visitor if you have any concerns about your child's vision at any stage.
NHS Choices website contains lots of information and advice about children's vision and sight tests.
Boots optician services in conjunction with the National Literacy Trust have developed a useful tool to help parents and carers find out at home if their child has any vision problems that might need to be checked out by a qualified optician. Zookeeper Joe is an online storybook which includes some basic eye tests.
You can find out more about Zookeeper Joe here (opens an external website)
Anyone with Down’s syndrome over the age of 14 years old can have a free annual health check with their GP. Find out more about this and specific health information on the Down's Syndrome Association website
They have also published the following useful resources:
For Families and Carers : Communication series (opens a page on the DSA website)
Hearing Impairment affecting children with Down's syndrome
The Down's Syndrome Association website contains specific advice about hearing loss and how it affects people with Down's syndrome.
Hearing Impairment (including glue ear)
Hearing aids and cochlear implants are provided by the National Health Service (NHS). The NHS might also provide any other hearing equipment your child may need, such as vibrotactile aids, or equipment to help you check and look after your child's hearing aids.
Children's Hearing Services are provided by Kingston Hospital NHS Trust for children registered with a Kingston GP or Hounslow and Richmond Community Healthcare for children registered with a Richmond GP. Both services offer advice and information about auxiliary aids on their websites.
Hearing Impairment: Handbook for Parents of Hearing Impaired Children in Richmond
This handbook is for all parents of children with hearing impairments who live in the borough of Richmond Upon Thames, including children with a temporary conductive hearing loss such as glue ear, and children with permanent hearing loss. This book is for parents of children with any level of deafness from mild to profound. There is information in the pack which is general advice and specific information about hearing condition which parents in Kingston will find useful too. However, Kingston parents should note that referrals and hearing services in Kingston are provided by a different health authority. You should contact your GP if you have any concerns.
Download the Handbook for Parents of Hearing Impaired Children in Richmond (opens a pdf)
Glue Ear leaflet (opens a word document)
Cerebra is a national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. They provide a sleep support service which includes a team of sleep practitioners covering parts of the UK who can offer help and advice on sleep issues, some of which include settling problems, difficulty sleeping alone and early rising.
Cerebra’s aim is to provide high quality health and social care information for the parents and carers of children aged 0-16 years with neurological conditions. Cerebra have a wide selection of guides for parents, including:
- Anxiety Guide: A Guide for Parents
- Decision Making, Confidentiality and Sharing Information: A Guide for Parents
- Finding and Assessing Sources of Legal Help: A Guide for Parents
- Pain in children with severe intellectual disability: A Guide for Parents
- Parent/Carer Rights: A Guide for Parents
- Problem-Solving Toolkit
- Social Care in England: A Guide for Parents
- Toilet Training for Children with Autism and Intellectual Disabilities
You can view the complete list of Cerebra guides here (opens a page on the Cerebra site)
- Intoeing Gait
- Flat Feet in Young Children
- Babywalkers - are they necessary?
- Head Turning Preference and Plagiocephaly
- Choosing the right school bag
- Symptomatic Hypermobility
- Choosing Footwear for Children
- Selective Dorsal Rhizotomy
- Downs Syndrome
What's Happening to Tom?
A book about puberty for boys and young men with autism and related conditions.
Talking together ... about growing up
A workbook about puberty for parents of children with learning disabilities.
Tips for When your Special Needs Daughter gets her Period
A link to an article from Special Needs Parenting Magazine.
Other books that have been recommended by a local organisation include:
Girls all Change (Girls! Girls! Girls! comic)
Ready Steady Change ( Boyz will be Boyz comic)
What's happening to Ellie? (Kate E. Reynolds)
Asperger's syndrome and Puberty (Alis Rowe)
Hug me, touch me (Sheila Hollins and Terry Roth)
Making Friends (Sheila Hollins and Terry Roth)
Tired Out is a sleep support hub, to support parents and carers of disabled children to sleep better.
Visit the Tired Out website
Other useful websites
NHS 111- is the new free, easy to remember number to call when you need medical help fast no matter where you are or what time it is. People should use the NHS 111 service if they need help or advice urgently but it’s not a life-threatening situation.
IWantGreatCare - ratings and reviews from patients of NHS hospitals, GP surgeries, dental surgeries, doctors, dentists, physiotherapists, clinics, pharmacies, nursing homes, medicines and wheelchair services.
Me first is an education and training resource that helps health and social care professionals to develop their knowledge, skills and confidence in communicating with children and young people. It does this by encouraging a child-centric mentality in staff, and by providing tools and advice to support this.
Great Ormond Street Hospital and Common Room Consulting have developed Me first in partnership with health and social care professionals and children and young people.
A Picture of Health - a range of Easy Read information that has been developed from NHS areas and is shared for other professionals to adapt or use.
Easyhealth – a range of easy read guides produced by different organisations giving useful information about keeping fit and looking after your health.