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PANS/PANDAS UK Charity

Organisation/Service Details

Organisation Details

Description of activity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.

One estimate suggests that up to 1 in 200 children suffer from this condition.

Resources for parents including diagnostic criteria and details of local support groups.

Resources for Medical professionals

Resources for teachers and Schools

Teacher training package

Facebook group for parents/caregivers

Facebook group for Young People age 12-17 with the condition.

Facebook group for Adults

Links to further Research

Advocacy and support from the charity

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Organisation Contact Details

Contact Details

Contact Name
Vicky Burford

Address and Accessibility

Accessibility

Accessible building
N/A
Accessible toilets
N/A
Parking facilities
N/A
Dietary needs catered for
N/A
Staff have specialist training
N/A
Please enter any further details about your accessibility / specialist support

All of Kingston and Richmond covered. We provide support via our Facebook group PANS PANDAS UK.

Availability

Availability Details

When is the activity or service available
All Year Round
Description of Eligibility or Referral Criteria and Pathways (if applicable)

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Free at point of access, supported through the PANS/PANDAS UK Charity.

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

Is there a cost for this service or activity
No

Categories

Which categories suit this organisation?

Services
Organisations / Charities

Age Range

Age of Users
From 4 To 19