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Description of activity
PMLD LINK was established to make a difference to the lives of children and adults with profound and multiple learning disabilities (PMLD). People with PMLD have profound intellectual and multiple disabilities, very severe communication problems, often extreme physical and/or sensory disabilities, and complex health needs.
Their needs are frequently overlooked by more general support organisations for people with learning disabilities. PMLD LINK maintains a clear focus on this small and often hard to reach group. Since 2007 PMLD LINK has been a registered ‘not for profit’ charity and its affairs are managed by volunteer trustees who have in-depth knowledge and are relatives of people with PMLD and/or are professionals with backgrounds in relevant health, education or social care services.