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The PDA Society

Organisation/Service Details

Organisation Details

Description of activity

The PDA Society is a charity, overseen by trustees, each of whom is a parent of a child with PDA.
Their aims are:

To help persons with Pathological Demand Avoidance (PDA) an autistic spectrum disorder and their families and carers in particular but not exclusively by:

A) Providing information, advice and support to those persons with PDA, their families and carers including those awaiting diagnosis; and
B) Advancing the education of the general public, in particular those responsible for the care, treatment and diagnosis of PDA by raising awareness in all matters relating to PDA.

The PDA Society is run by volunteers, all of whom are parents of children with PDA. They aim to answer your queries within 3-5 days, however during school holiday periods there may be a longer delay. Email is the best way to get in touch.

Statement from Achieving for Children on PDA:

Pathological demand avoidance (PDA) is a profile that describes those whose main characteristic is to avoid everyday demands and expectations to an extreme extent. AfC and South West London & St George’s Mental Health NHS Trust follow the guidelines in the DSM-V or ICD-10 manuals of diagnostic criteria currently used in the UK and internationally. These guidelines do not recognise PDA as a condition and therefore diagnostic services such as CAMHS will not make a separate diagnosis of PDA and do not fund independent assessments. Frequently, children who present with this profile of difficulties meet the criteria for Autism Spectrum Condition (ASC). An autism assessment is important / helpful if you feel your child has features of a PDA profile because alongside assessing for ASC, it also identifies the type of interventions that would be supportive.
We appreciate that all children and young people are unique and that some parents and carers may have an interest in understanding more about this subject. We have therefore included information on PDA on this website to meet this need.

Organisation Contact Details

Contact Details